By Emilie Hackett
Special to The Record
Catherine Roy and Jean-François Nadeau’s daughter Èva suffers from a rare disease: the spontaneous genetic mutation of gene CDKL-5. Now almost three years old, Èva will live with hypotonia (low muscle tone), seizures, a severe intellectual disability, a lack of motor skills, and the inability to ever speak or walk. Une maison pour Èva, developed by France Champagne, Roy’s colleague at the CIUSSS de l’Estrie-CHUS, and her husband Pierre Gauvin, is a campaign with the goal of raising $250,000 for the construction of an adapted home to meet Èva’s ongoing needs. Èva’s story has moved dozens of business owners around the Townships, notably Alain Patry, president of APCHQ Estrie and Gilles Patry inc. See full story in the Thursday, September 20 edition of The Record.
