For nearly nine months, The Record has been following the great journey of Èva Roy-Nadeau and her family. Today, they open the latest chapter of their lives as they move into their new home that is fully adapted for Èva, who suffers from a rare and incurable disease. Thanks to the generous support of many volunteers, collaborators, and partners, the Roy-Nadeau family received over $250,000 in donations, goods, and services to make the Une maison pour Èva project a reality. Jean-François Nadeau could barely hold back tears, while cradling his daughter Èva, as Catherine Roy held his hand reassuringly in front of their new Fleurimont home. These parents have gone through immense hardship over the last few years. Three years ago, Nadeau and Roy were faced with a lifechanging diagnosis: their youngest daughter had the spontaneous genetic mutation of gene CDKL-5. She suffers from drug-resistant epilepsy, has low muscle tone, and has a severe intellectual disability. She will never be able to walk, talk, or feed herself. Èva, now almost four years old, will have an average life expectancy. See full story in the Monday, July 15 edition of The Record.
By Emilie Hackett, Special to the Record