By Emilie Hackett, Special to the Record – Announced in September 2018, the Une maison pour Èva campaign is one step closer to being achieved. The Roy-Nadeau family’s adapted home is almost completed, and the family is expected to be moving in this summer.
“We are so grateful for all the support we’ve received since the beginning of this great adventure. Our community really has its heart in the right place. This project’s realization will make an enormous difference in our lives. Beyond the house, our daily life with our daughter will also be significantly improved,” mentioned Èva’s parents, Catherine Roy and Jean-François Nadeau. Three years ago, Jean-François Nadeau and Catherine Roy had to accept a lifechanging diagnosis: their youngest daughter, Èva, had the spontaneous genetic mutation of gene CDKL-5, a rare and incurable disease. She suffers from drug-resistant epilepsy, has low muscle tonus, and has a severe intellectual disability. She will never be able to walk, talk, or feed herself. See full story in the Tuesday, June 11 edition of The Record.