By Emilie Hackett, Special to the Record – The Nadeau-Roy family has come a long way since the launch of the Une Maison pour Èva campaign, inaugurated in September 2018 by France Champagne, a friend of the family. So far, over $175,000 has been put towards the project, which aims to provide the family with a home adapted for their little Èva’s special needs. At the age of three months, Èva was diagnosed with a rare disease: the spontaneous genetic mutation of gene CDKL-5. Èva will live her entire life with hypotonia (low muscle tone), daily epileptic seizures that resist medication, a severe intellectual disability and a lack of fine motor skills. Èva will most likely never walk or eat on her own. See full story in the Friday, Dec. 28 edition of The Record.
